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Health Privacy

Genetic Privacy

Online Legislative Tracking
From the Genetic Technologies Project, provides on-line legislative tracking services of state genetic privacy issues to the public. 

Summary Table of State Genetic Privacy Laws 
Updated periodically to reflect legislative changes. 

Genetic Privacy
A Genetics Brief on policy issues related to genetic privacy. 

Genetics Policy Report: Privacy
Addresses  issues in greater detail -  available for purchase. 

Newborn Genetic Screening Privacy Laws
This page summarizes state laws related newborn screening privacy and provides links
to the text of the statutes.



Medical Records

Medical Record Privacy:: What is HIPPA?
As of Monday, April 14, 2003 "millions of health plans, hospitals, doctors and other health care providers around the country must comply with new federal privacy regulations," according to Secretary Tommy Thompson of the Department of Health and Human Services (HHS). Billions of dollars are being spent to bring public and private sector records into compliance

Model State Public Health Privacy Project
Develops, drafts, and implements a model state privacy law pertaining to the use of public health information. (Any statements, ideas, or documents arising out of this project do not necessarily reflect the opinions, positions, or views of the sponsoring or affiliated organizations or their officers, employees, members, or advisors.)



Links
Federal Health Privacy Regulations Fact Sheet
from the U.S. Department of Health and Human Services (HHS) Office for Civil Rights

Office for Human Research Protections (OHRP)
Oversees the protection of human subjects who participate in scientific research funded by the federal government or to be submitted to the Food and Drug Administration.

Tips on Informed Consent
from OHRP.

50-State Health Insurance Portability and Accountability Act Privacy Pre-emption Analysis Tool
from the Health Insurance Association of America (HIAA)

California HealthCare Foundation
Privacy page provides links to current articles on health privacy and analysis of health privacy issues.
 

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