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Massachusetts

Family Caregiver Support

Facts at a Glance

 Facts in Brief

 Massachusetts

United States 

 Older Population  
 Population age 60+  1,096,600  45,797,200 
 Population age 65+  860,200  34,991,800
 Population age 85+  116,700  4,239,600
 Proportion age 65+ (National rank)  12th  N/A
 Proportion age 85+ (National rank)  10th  N/A
 Adults with Disabilities    
 Percent of population age 21 to 64 with a disability  17.9%  19.2%
 Percent of population age 65+ with a disability  37.8%  41.9%
 Children Raised by Grandparents  
 Number of grandparents raising grandchildren  27,915  2.4 million
 Number of children being raised by grandparents  67,781 (4.5% of children under age 18)  4.5 million (6.3% of children under age 18)
 Informal Caregiving    
 Number of informal caregivers in the state  .6 million  27.2 million
 Caregiving hours per year  678.7 million  29 billion
 Market value of informal care  $5.9 billion  $257 billion

MASSACHUSETTS’ SUPPORT NETWORK

  • Family Caregiver Support Program

Offers: Adult day, in-home, overnight and week-end/camp respite options. Other services include counseling; education and training; information and assistance; support groups; care management; family consultation and meetings; legal and/or financial consultation; assistive devices; home modification/repairs, homemaker/chore/personal care; transportation; and supplies.

Funded by: National Family Caregiver Support Program under Older Americans Act Title III E, state general funds, foundation funds, private donations and voluntary client contributions; administered by Massachusetts Office of Elder Affairs and locally by area agencies on aging/Aging Services Access Points.

Eligibility: Caregivers must be age 18 or older; care recipients must be a minimum of age 60.

  • Home and Community-Based Waiver

Offers: Adult day, in-home, overnight and week-end respite options, with no caps on services; other services include home modification/repairs, homemaker/chore/personal care, and transportation.

Funded by: Medicaid home and community-based services waiver and state general funds; administered by Massachusetts Office of Elder Affairs and locally by Aging Services Access Points.

Eligibility: No minimum age for caregivers; recipients must be a minimum of age 60 and meet nursing home level of care criteria.

  • Home Care Program

Offers: Adult day, in-home, overnight and week-end respite options, with no caps on services; other services include home modification/repairs, homemaker/chore/personal care, and transportation.

Funded by: State general funds and voluntary client contributions; administered by the Massachusetts Office of Elder Affairs and locally by Aging Services Access Points.

Eligibility: No minimum age for caregivers. Recipients must be a minimum of age 60 and be impaired in four or more activities of daily living and/or instrumental activities of daily living.

  • Grandparent and Other Relative Caregiver Support Programs

Offers: Respite care and other support services designed to address the needs of grandparent and other relative caregivers of children. See www.gu.org/factsheets.asp for details on Massachusetts programs.

Funded by: Older Americans Act Title III E, state general revenues, and other sources. The Family Caregiver Support Program is administered by the Massachusetts Office of Elder Affairs and locally by area agencies on aging/Aging Services Access Points.

Eligibility: Grandparent and other relative caregivers must be a minimum of age 60 and caring for a child age 18 or younger to receive services in the Family Caregiver Support Program.

CONSUMER DIRECTION

Consumer direction is a philosophy that accommodates people’s needs and preferences by offering them maximum choice and control over services they use. One Massachusetts caregiver support program offers consumer direction.

  • Family Caregiver Support Program offers a menu of services, including respite and supplemental services from which caregivers choose.
  • Home Care Program offers a menu of services in some areas of the state.

LEGISLATION

No legislation related to caregiving.

Sources: National Association of State Units on Aging, e-mail survey of State Family Caregiver Support Program contacts, Washington, D.C., June 2005; National Center on Grandparents Raising Grandchildren at Georgia State University, Research—Fact Sheets, Atlanta, Ga., 2005; Feinberg, Lynn Friss, et al., The State of the States in Family Caregiver Support: A 50-State Study, Washington, D.C.: Family Caregiver Alliance, National Center on Caregiving, 2004; Generations United, National Center on Grandparents and Other Relatives Raising Children, State Fact Sheets, Washington, D.C., October 2003; National Family Caregivers Association, Prevalence and Economic Value of Family Caregiving: State-by-State Analysis, Kensington, Md., 2000; U.S. Census Bureau, Census 2000.

Contact

Sheila Donahue King
Executive Office of Elder Affairs
One Ashburton Place
Boston, Mass. 02108
(617) 222-7421
Sheila.Donahue-King@state.ma.us
www.media.seniorconnection.org

For More Information

National Association of State Units on Aging
1201 15th Street, N.W., Suite 350
Washington, D.C. 20005
(202) 898-2578
www.nasua.org

National Conference of State Legislatures
444 North Capitol Street, N.W., Suite 515
Washington, D.C. 20001
(202) 624-5400
www.ncsl.org

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