Mapping Public Policy for Genetic Technologies

Appendix B. Bibliography and Additional Resources

Aldhous, Peter. "Genetic Screening: California Tackles Insurance." Nature (Sept. 5, 1991), 353.

Allen, William, and Harry Ostrer. "Anticipating Unfair Uses of Genetic Information." American Journal of Human Genetics 53 (1993), 16-21.

Alper, J., et al. "Genetic Discrimination and Screening for Hemochromotosis." Journal of Public Health Policy 15 (1994): 345-358.

Alper, J., et al. "Genetic Discrimination and the Public Entities and Public Accommodation Titles of the Americans with Disabilities Act." American Journal of Human Genetics 53 (1993): 26-32.

American Academy of Actuaries. Conference on Genetic Testing and Insurance. Washington, D.C., May 18, 1995.

Anderson, Marcellita. "Genetic Testing in Insurance Underwriting: a Blessing or a Curse? An Examination of the Tension Between Economics and Equity in Using Genetic Testing in Risk Classification." National Insurance Law Review 6, no. 3 (1993).

Andrews, Lori. "Body Science." ABA Journal April 1997, 44.

"A Review of State Legislation on DNA Forensic Data Banking." American Journal of Human Genetics 54, no. 6 (June 1994): 941-958.

"Arizona: Legislature Passes Bills on Use of Genetic Tests, Medicaid Pilot." BNA's Health Law Reporter. May 1, 1997, 675.

Asa, Rick. "Genetic Testing Reveals Patients' Medical Legacy." Illinois Medicine (Dec. 1, 1995): 8.

"A Survey of State Insurance Commissioners Concerning Genetic Testing and Life Insurance." American Journal of Human Genetics 51, no. 4, (Oct. 1992).

Barrad, Catherine M. Valerio. "Genetic Information and Property Theory." Northwestern University Law Review 87 (Spring 1992):1037.

Bereano, Philip L. "DNA Identification Systems: Social Policy and Civil Liberties Concerns." International Journal of Bioethics 1, no. 3 (Sept. 1990): 146-155.

Billings, Paul R., et al.,"Discrimination as a Consequence of Genetic Testing," American Journal of Human Genetics 50 (1992):50: 476-482.

Billings, Paul R.. "Causes of Discrimination in Health Insurance." GeneWATCH 7, no. 6 (1992): 2-3.

Brahams, Diana. "Compulsion in DNA Paternity Tests." Lancet 337, no. 8734 (Jan. 19, 1991): 169.

Burk, Dan L. "DNA Identification Testing: Assessing the Threat to Privacy." University of Toledo Law Review 24, no. 1 (Fall 1992): 87-102.

"California Law will Prohibit Genetic Discrimination." Nature 371, no. 6497 (Oct. 6, 1994): 468.

Chase, Debbie. "Genetic Testing: Emotionally Charged Issue Threatens Biggest Risk Classification Battle Yet." Council Review 2 ( July 1992).

"Chief Says Panel Backs Courts' Use of a Genetic Test." New York Times (April 15, 1992): A1, A23.

Compulsion in DNA Paternity Tests. Lancet 337, no. 8734 (Jan. 19, 1991):169.

"Confidentiality of Genetic Information In the Workplace." American Journal of Law & Medicine 17, nos. 1 and 2 (1991): 75-108.

Council for Responsible Genetics. "Laws Regarding Genetic Discrimination." Cambridge, Mass. (1996).

Council of State Governments. Advances in Genetic Information, A Guide for State Policy Makers. (1992).

"Creating a Genetic Underclass: The Potential for Genetic Discrimination by the Health Insurance Industry." Pace Law Review 13, no. 1 (Winter 1993): 189-228.

Cushing, T.H. "Should There be Genetic Testing in Insurance Risk Classification?" Defense Counsel Journal (April 1993): 249-263.

"Discrimination as a Consequence of Genetic Testing." American Journal of Human Genetics 50, no. 3 (March 1992): 476-482.

"Discrimination Based on Genetic Information." Jurimetrics Journal 33, no. 1 (Fall 1992):13-18.

"DNA Data Banking: The Dangerous Erosion of Privacy." Cleveland Law Review 38, no. 3 (1990): 455-486.

"DNA Identification Testing: Assessing the Threat to Privacy." University of Toledo Law Review 24, no.1 (Fall 1992): 87-102.

Doot, Gerry, "The Secrets of the Genome Revealed: Threats to Genetic Privacy." Wayne Law Review 37, no. 3 (Spring 1991): 1615-1645.

Human Genome Insurance Project. The Ethical, Legal and Social Implications of Predictive Genetic Testing for Health Insurance: Policy Analysis & Recommendations - A preliminary report. Gainesville Fla.: HGIP, 1993.

"Fetal Protection & Employment Discrimination - The Johnson Controls Case." New England Journal of Medicine 325, no. 10 (Sept. 5, 1991): 740-743.

Gaulding Jill. "Race, Sex and Genetic Discrimination in Insurance: What's Fair?" Cornell Law Review 80 (Sept. 1995): 1646.

Geller, L., et al. " Individual, Family, and Societal Dimensions of Genetic Discrimination: A Case Study Analysis." Science and Engineering Ethics 2, no. 1 (1996): 71-88.

Gordon, D. "Breast Cancer Activists Worry That a Bad Genet Will Cancel Insurance" The Virginian Plot (January 19, 1995).

"Genetic Discrimination and Insurance Underwriting." American Journal of Human Genetics 51, no. 4 (Oct. 1992):901-903.

"Genetic Discrimination and Screening for Hemochromatosis." Journal of Public Health Policy 15, no. 3 (Autumn 1994): 345-359.

"Genetic Discrimination and the Law." American Journal of Human Genetics 50, no. 3 (March 1992): 465-475.

"Genetic Discrimination and the Public Entities & Public Accommodations Titles of the ADA." American Journal of Human Genetics 53, no.1 (July 1993): 26-32.

"Genetic Discrimination: The Use of Genetically Based Diagnostic and Prognostic Tests by Employers and Insurers." American Journal of Law & Medicine 17, nos. 1 and 2 (1991): 109-144.

"Genetic Distinctions Are not Necessarily Examples of Genetic Discrimination." American Journal of Human Genetics 51, no. 4 (Oct. 1992): 897-898.

"Genetic Information and the Workplace: Legislative Approaches and Policy Challenges." Science 275 (March 21, 1997): 1755-1757.

"Genetic Screening: CA tackles Insurance." Nature (Sept. 5, 1993): 353.

"Genetic Testing and Insurance: Apocalypse Now?" Drake Law Review 40, no. 3 (1991): 507-532.

"Genetic Testing and the Social Responsibility of Private Health Insurance Companies." Journal of Law, Medicine & Ethics 21, no. 1 (Spring 1993): 109-116.

"Genetics and the Moral Mission of Health Insurance." Hastings Center Report 22, no. 6 (Nov.-Dec. 1992): 12-17.

Genetic Discrimination and Health Care Reform. Issued by March of Dimes Birth Defects Foundation, (Presentation at the Ethical Legal and Social Implications of Human Genome Research Workshop on Genetics and Health Care Reform, Feb. 15, 1994.)

Grubb, Andres; and David S. Pearl. Blood Testing, AIDS and DNA Profiling: Law and Policy. Bristol, England: Jordan and Sons, 1990:188.

"Hereditary Infertility: Grounds for Genetic Discrimination?" American Journal of Human Genetics 53, no. 2 (August 1993): 535-536.

"Insurance Commissioners and Genetic Discrimination." American Journal of Human Genetics 52, no. 5 (May 1993): 10/8.

"Insurance for the Insurers: The Use of Genetic Tests." Hastings Center Report 22, no. 6 (Nov.-Dec. 1992): 6-11.

Kass, Nancy. "Insurance for the Insurers: The Use of Genetic Tests." Hastings Center Report 22, no. 6 (Nov.- Dec. 1992): 6-11.

Kirby, Michael. "The Human Genome Project-Promise and Problems." Journal of Contemporary Health Law and Policy 11 (Fall 1994):1.

Lee, Carol. "Creating a Genetic Underclass: "The potential for Genetic Discrimination by the Health Insurance Industry." Pace Law Review 13 (Winter 1993): 189.

Lowe, Robert. "Genetic Testing and Insurance: Apocalypse Now?" Drake Law Review 40, no. 3 (1991): 507-532.

McEwen, Jean E. and Philip R. Reilly. "A Review of State Legislation DNA Forensic Data Banking." American Journal of Human Genetics 54, no. 6 (June 1994): 941-958.

McEwen, Jean E. et al. "A Survey of State Insurance Commissioners Concerning Genetic Testing and Life Insurance." American Journal of Human Genetics 51 (1992): 785-792.

_______________. "A Survey of Medical Directors of Life Insurance Companies Concerning Use of Genetic Information." American Journal of Human Genetics 53 (1993): 33-45.

McGoodwin, Wendy. "Genie Out of the Bottle: Genetic Testing and the Discrimination It's Creating." The Washington Post (May 5, 1996).

"Muddling Genetic Discrimination." American Journal of Human Genetics 51, no. 4 (Oct. 1992): 899-901.

Murphy, Dana H. "The Ultimate Pandora's Box? Insurers Respond to the Human Genome Project." Contingencies (May/June 1993): 30.

Natowicz, N., et al. "Genetic Discrimination and the Law." American Journal of Human Genetics 50 (1992): 465-475.

Nobles, Kimberly. "Birthright or Life Sentence: Controlling the Threat of Genetic Testing." Southern California Law Review, 65 (May 1992): 2081.

"Ohio Task Force on Genetic Testing in Health Insurance, Final Report." Ohio Task Force on Genetic Testing (December 1995).

Ostrer, Harry, et al., "Insurance and Genetic Testing: Where Are We Now?" American Journal of Human Genetics 52 (1993): 565-577.

"Privacy Rules for DNA Databanks: Protecting Coded Future Diaries." JAMA 170, no. 17 (Nov. 17, 1993): 2346-2350.

"Reply to Hook and Lowden: The Definition and Implications of Genetic Discrimination." American Journal of Human Genetics 51, no. 4 (Oct. 1992): 903-905.

"Reply to Hook Genetic Discrimination and Public Safety." American Journal of Human Genetics 51, no 4 (Oct. 1992): 898-899.

"Report of the ACLI-HIAA Task Force On Genetic Testing, American Council of Life Insurance." Health Insurance Association of America (1991).

Rezabek, Debra P. "Genetic Testing: Opening Pandora's Box?" Association of Life Insurance Counsel (1991): 293.

Rothstein, Mark A. "The Use of Genetic Information for Nonmedical Purposes." Cleveland State University Journal of Health and Law 9 (1994-95):109.

Schmitt, Frederick. "Insurers Oppose Arizona Genetic Test Law." National Underwriter, L&H (May 19, 1997): 3.

Senate Select Committee on Genetics and Public Policy. "Truth and Consequences of the Genetic Revolution." Human Genetics Research, Informational Hearing, April 8, 1996.

_______________. "Human Genetics Research." Informational Hearing. April 8, 1996.

_______________. "DNA on Trial." Informational Hearing, May 9, 1996.

"Setting Standards for the use of DNA-typing Results in the Courtroom - The State of the Art.." New England Journal of Medicine 326, no. 24 (June 11, 1992): 1641-1644.

Shapiro, Donald, and Michelle L. Weinberg. "DNA Data Banking: The Dangerous Erosion of Privacy." Cleveland State Law Review 38, no. 3 (1990): 455-486.

"Statement of Recommendations Concerning Genetic Discrimination and ADA Implementation." Human Genome News 3, no. 3 (Sept. 1991).

Strolberg Sheryl. "Series: Insurance Falls Prey to Genetic Bias." Los Angeles Times (March 27, 1994).

The Gene Wars: Science, Politics and The Human Genome. New York, N.Y. Norton, 1994.

"The Private Health Insurance Industry: The Real Barrier to Health Care Access?" Cambridge Quarterly of Healthcare Ethics 3, no. 1 (Winter 1994): 99-107.

"The Secrets of the Genome Revealed; Threats to Genetic Privacy." Wayne Law Review 37, no. 3 (Spring 1991): 1615-1645.

"The Use of Genetic Testing in the Health Insurance Industry: The Creation of a Biologic Underclass." Southwestern University Law Review 22, no. 4 (1993): 1211-1228.

U.S. Congress, Office of Technology Assessment. Genetic Tests and Health Insurance: Results of a Survey, October 1992.

_______________. Medical Monitoring and Screening in the Workplace: Results of a Survey, October 1991.

_______________. Medical Testing and Health Insurance, 1988.

University of Florida College of Medicine. Human Genome Insurance Project. The Ethical, Legal, and Social Implications of Predictive Genetic Recommendations. Gainesville, Fla. (April 1993): 48.

"Whether a Genetic Defect is a Disability Under ADA: Preventing Genetic Discrimination by Employers." Annals of Health Law 1 (1992): 107-118.

Uzych, Leo. "Is Big Brother Closing In? Genetic Testing Could Demolish Broad Access to Health Care." Pennsylvania Law Journal (August 1993): 2.

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